Cardiff and Vale University Health Board
International Rare Disease Consultation
The Cardiff and Vale University Health Board plan to lead a global Priority Setting Partnership (PSP) on rare diseases using the James Lind Alliance (JLA) approach.
This process brings together patients, carers, and healthcare professionals to identify the most important unanswered research questions.
A steering group of 20 international stakeholders, half of whom will be people with lived experience of rare diseases or their advocates will define the project’s scope.
The PSP will take a broad, inclusive view, gathering research priorities from people of all ages and from low-, middle-, and high income countries
What the supplier must deliver
A steering group of 20 international stakeholders
A steering group of 20 international stakeholders, half of whom will be people with lived experience of rare diseases or their advocates will define the project’s scope.
Derived from the notice text — always confirm against the original documents.
- OCID
- ocds-h6vhtk-06495b
- Stage
- award · Awarded
- Source
- Find a Tender
- Buyer ref
- 056825-2026
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